March 26th is Purple Day for Epilepsy Awareness.
Firstly, I ordered my own purple leather Medic-Alert Bracelet to support the cause.
Secondly, I approached the right people and requested a staff morning tea to raise money for Epilepsy Queensland. I was told no. Despite there being two staff members dealing with epilepsy, and numerous students, I was told no.
Admittedly, I was furious at the time. However, I cannot expect others to understand the reality of living with epilepsy or expect them to support something they don’t understand.
In a moment of clarity, I decided to creatively bypass this decision. Instead of asking staff to donate to yet another cause, I have requested staff at least wear purple. If the male primary teaching staff can have striped shirt day or spotted tie day, then I certainly cannot get into trouble for requesting staff wear purple! Today I politely requested staff at my school to wear purple. I will provide the purple food! At this time of the term, a little purple wrapped Cadbury Chocolate never goes astray!
I also provided information about Epilepsy Queensland’s Purple Pledge. All you need to do is read the 10 Facts about Epilepsy and sign Epilepsy Queensland’s Purple Pledge. I’d like to quote fact number nine that really hits home. I have lost count of the number of times I either worried about professional respect, trust, and career advancement. Check out fact number nine:
- The social stigma, coupled with the emotional and physical trauma associated with uncontrolled epilepsy, means that many people living with epilepsy suffer in silence, often for years. People with epilepsy may avoid revealing that they have epilepsy to their employer, their friends, even their loved ones, for fear of rejection, loss of acceptance or opportunity, or of being shunned. These are very real fears, as stigma and ignorance still exist today.
If you are interested, the following web site is a great place to start:
Share the love! Support epilepsy awareness month and wear purple on March 26th!